Contains links to support groups in Europe for families affected by ichthyosis.

Aims to educate, inspire and connect those touched by ichthyosis and related disorders. Features conference details, medical section, extensive condition resources and information on sources of support.

Presents hints and tips on living with ichthyosis, plus a section written by a young boy with lamellar ichthyosis. Also features detailed notes from his Mom on caring for a child with this condition.

Encourage research into the diagnosis and treatment of the ichthyoses and related disorder by enrolling patients on this register.