Ichthyosis in the Best of the Web Directory

Ichthyosis

  • European Network for Ichthyosis

    Contains links to support groups in Europe for families affected by ichthyosis.

  • Ichthyosis Foundation

    Aims to educate, inspire and connect those touched by ichthyosis and related disorders. Features conference details, medical section, extensive condition resources and information on sources of support.

  • Ichthyosis Information

    Presents hints and tips on living with ichthyosis, plus a section written by a young boy with lamellar ichthyosis. Also features detailed notes from his Mom on caring for a child with this condition.

  • The National Registry for Ichthyosis and Related Disorders

    Encourage research into the diagnosis and treatment of the ichthyoses and related disorder by enrolling patients on this register.

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