The National Organization for Rare Disorders offers a general description of the disorder. Includes alternative names and a list or related organizations.

Support group created for people with Stickler Syndrome. Aims to raise public awareness about the disease and obtain support for all those affected.

Presents information about Stickler Syndrome including related medical articles and links to sites and research.

Aims to facilitate or enhance access to information regarding the widely under-diagnosed Stickler Syndrome.