Rare Disorders in the Best of the Web Directory

Rare Disorders

  • About.com: Rare Diseases

    Presents an overview of rare diseases along with articles on getting a diagnosis, medical tests, and applicable drugs.

  • Cherubs

    Information from the Association of Congenital Diaphragmatic Hernia Research, Advocacy, and Support.

  • Office of Rare Disease

    Information on scientific activities and a portal providing information on major topics of interest in rare diseases research.

  • Rare Disease Search Engine

    Specialized web search tool focused on information and resources involving rare diseases and related topics.

  • Rare Disease Therapeutics, Inc.

    Diopharmaceutical specializing in the development, registration, and distribution of orphan disease products.

  • RareShare

    Offers disorder-based communities for patients, families, and health care professionals affected by rare disorders.

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