Locate information and organizations that provide educational resources on the symptoms and treatments of various rare diseases.
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About.com: Rare Diseases
Presents an overview of rare diseases along with articles on getting a diagnosis, medical tests, and applicable drugs.
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Cherubs
Information from the Association of Congenital Diaphragmatic Hernia Research, Advocacy, and Support.
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Orphanet
Portal for rare diseases and orphan drugs. Features an alphabetic disease encyclopedia, plus details of clinical trials, orphan drugs and research links.
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Rare Disease Search Engine
Specialized web search tool focused on information and resources involving rare diseases and related topics.
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Rare Disease Therapeutics, Inc.
Diopharmaceutical specializing in the development, registration, and distribution of orphan disease products.
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RareShare
Offers disorder-based communities for patients, families, and health care professionals affected by rare disorders.