Rare Disorders in the Best of the Web Directory

Rare Disorders

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Locate information and organizations that provide educational resources on the symptoms and treatments of various rare diseases.
  • About.com: Rare Diseases

    Presents an overview of rare diseases along with articles on getting a diagnosis, medical tests, and applicable drugs.

  • Cherubs

    Information from the Association of Congenital Diaphragmatic Hernia Research, Advocacy, and Support.

  • Orphanet

    Portal for rare diseases and orphan drugs. Features an alphabetic disease encyclopedia, plus details of clinical trials, orphan drugs and research links.

  • Rare Disease Search Engine

    Specialized web search tool focused on information and resources involving rare diseases and related topics.

  • Rare Disease Therapeutics, Inc.

    Diopharmaceutical specializing in the development, registration, and distribution of orphan disease products.

  • RareShare

    Offers disorder-based communities for patients, families, and health care professionals affected by rare disorders.

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