Sanfilippo Syndrome in the Best of the Web Directory

Sanfilippo Syndrome

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Informational sites, organizations and support groups for San Fillippo syndrome, also know as muncopolyaccharidosis (MPS).
  • Ben's Dream

    Site created for a young Sanfilippo Syndrome patient. Presents information about the disease, related news and research, and links to other sites of interest.

  • eMedicine

    Contains a clinical reference pertaining to muncopolyaccharidosis Type V11, written by Dr. Donald Nash.

  • MedlinePlus - Sanfilippo syndrome

    Contains a definition, alternative names, causes symptoms, tests, treatment, and the prognosis of MPS III.

  • Medscape Reference: Genetics of Mucopolysaccharidosis Type III

    Provides an overview of the disease and presents its pathophysiology and epidemiology.

  • Team Sanfilippo Foundation

    Nonprofit medical research foundation founded by a group of parents who seek potential therapies that can be tested clinically in the future. Aims to advance research, education, and the quality of life of children affected by the Sanfilippo syndrome.

  • Wrong Diagnosis

    Introduction to the disease also known as Sanfilippo Syndrome and information about its symptoms, causes, treatment, complications, and prognosis. With statistics, videos, and stories.

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