Cystinosis in the Best of the Web Directory


Australian Cystinosis Support Group

Provides information and support for families and friends living with cystinosis, including medical referrals to doctors specializing in the condition.

Cure Cystinosis International Registry

Explains cystinosis, genetics and genetic testing, carrier status, and care and management. Offers a professional research portal and news about clinical trials.

Cystinosis Foundation

A non-profit organization supporting and educating families and the medical community through the dissemination of educational literature, funding research, and annual conferences. Includes news and resources.

Cystinosis Research Network

Contains information about the CRN, the disorder, community news, conferences, resources, and a newsletter. Based in Illinois. CystinosisCRN

eMedicine: Cystinosis

Offers a clinical article about cystinosis written by Dr. Ewa Elenberg.

Genetics Home Reference

Find in-depth information about cystinosis. Includes the types, a definition, and the genes related to the disorder.

UCSD Biochemical Genetics: Cystinosis

Gives general information and updates. Operates the Cystine Determination Laboratory, an accredited analytical laboratory.

Submit a site to this category