Ichthyosis

• Trichothiodystrophy

• European Network for Ichthyosis  - Contains links to support groups in Europe for families affected by ichthyosis.
• Ichthyosis Foundation  - Aims to educate, inspire and connect those touched by ichthyosis and related disorders. Features conference details, medical section, extensive condition resources and information on sources of support.
• Ichthyosis Information  - Presents hints and tips on living with ichthyosis, plus a section written by a young boy with lamellar ichthyosis. Also features detailed notes from his Mom on caring for a child with this condition.
• The National Registry for Ichthyosis and Related Disorders  - Encourage research into the diagnosis and treatment of the ichthyoses and related disorder by enrolling patients on this register.