Rarer Disorders Organizations

• Health: Organizations 

• Canadian Organization for Rare Disorders (CORD)  - National network of organizations representing persons with rare disorders. Represents and advocates for health policy and effective health care system.
• Degos Patients Support Network  - Providing news, FAQs, forums, and related links.
• Erythromelalgia Association  - Information on symptoms, diagnosis, treatment, support, events, and FAQ.
• Genetic and Rare Disorders Organisation (GRDO)  - Network of organizations for genetic and rare disorders and diseases. Aims to provide a solid representation for voluntary groups that advocate people with or at risk of developing genetic and rare disorders.
• Malaysian Rare Disorders Society (MRDS)  - Voluntary organization representing and looking out for the welfare of individuals affected by rare disorders. Presents fact sheets, forums, publications, and a frequently asked questions section.
• Malignant Hyperthermia Association of the United States (MHAUS)  - Association dedicated to the control of malignant hyperthermia (MH), a life-threatening genetic disorder triggered by exposure to certain types of breathable anesthetics.
• National Organization for Rare Disorders  - Contains information on the prevention, treatment and cure of rare diseases.
• Progeria Research Foundation  - Organization provides information on activities, publications, medical database, and related resources.
• South African Foundation for Rare Disorders (SAFRD)  - Organization supporting people with rare disorders. Creates a network of individuals who fully understand and have the capacity and dedication to provide assistance to patients and their families.
• Taiwan Foundation for Rare Disorders (TFRD)  - Online home of the TFRD presents news and events, contact details, forums, newsletters, and a photo gallery.
• Unique  - Rare chromosome disorder support group. Serves as a source of information to families and individuals with rare chromosome disorders.