- Cherubs
- Information from the Association of Congenital Diaphragmatic Hernia Research, Advocacy, and Support.
- Degos Patients Support Network
- Providing news, FAQs, forums, and related links.
- Erythromelalgia Association
- Information on symptoms, diagnosis, treatment, support, events, and FAQ.
- Malignant Hyperthermia Association of the United States (MHAUS)
- Association dedicated to the control of malignant hyperthermia (MH), a life-threatening genetic disorder triggered by exposure to certain types of breathable anesthetics.
- National Organization for Rare Disorders
- Contains information on the prevention, treatment and cure of rare diseases.
- Office of Rare Disease
- Information on scientific activities and a portal providing information on major topics of interest in rare diseases research.
- Progeria Research Foundation
- Organization provides information on activities, publications, medical database, and related resources.
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