Porphyria Organizations

American Porphyria Foundation

Serves to enhance public awareness of porphyrias, educate, support research, and act as advocate. Includes news, research, registry, and drug information.

British Porphyria Association

UK volunteer-run charity discusses porphyrias, news and events, coping tips, publications, and related information.

Cure Porphyria Organization

Volunteer organization shares history, mission, services, and support group.

European Porphyria Network (EPNET)

Works to improve diagnosis and treatment of porphyrias, with history, goals, news, and information for patients and healthcare professionals.

Porphyria Association

Australian organization reviews what it is, why porphyria is studied, testing, safe and unsafe drugs, treatment anecdotes, and latest news.

The Porphyrias Consortium

Collaborative seeks to improve diagnosis, treatment, and prevention of these conditions. Includes patient and professional information, news, events, and history.

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