Neurofibromatosis Associations

• Health: Conditions and Illness: Neurological Disorders: Organizations 

• British Columbia Neurofibromatosis Foundation  - Aims to empower and improve lives of people affected by the genetic disorder through support services, awareness campaigns, and treatment research funding.
• Children’s Tumor Foundation  - Non-profit medical institution which supports research and development of treatments and cures of genetic disorders. With details on volunteer programs.
• Neurofibromatosis Association  - Employs a team of specialist advisers which provide help, support and advice to patients, families, and health professionals. Details fund raising activities and events.
• Neurofibromatosis Association of Australia  - Focuses on supporting members, raising public awareness, and promoting research on the disease. Posts a membership application form and event updates.
• Neurofibromatosis Clinics Association  - Aims to raise awareness about the genetic condition through information dissemination campaigns for health professionals, patients and the public.
• Neurofibromatosis Incorporated  - Charitable organization which provides a support network for patients through education, advocacy, partnerships, and research.
• Racing for Research  - Contains articles about research updates, shows team photos, and provides details on upcoming fundraising events.
• Texas Neurofibromatosis Foundation  - Non-profit organization which aims to provide resources for the treatment, prevention and cure of the disorder. Also holds the Peter Lowry Family Assistance fund.