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Category Description:
 

This category looks at Tuberous Sclerosis, also called Tuberous Sclerosis Complex (TSC), a genetic disorder in which tumors affect more than one organ.

Due to the similarity in symptoms, some medical professionals believe that Lymphangioleiomyomatosis (LAM) may be an abnormal or unusual form of TSC.

Information includes symptoms, diagnosis, treatment, and prognosis. Support groups and organizations are also provided.

  • Australasian Tuberous Sclerosis Society  - Information and support for people with tuberous sclerosis complex and their families.
  • Cincinnati Children's Tuberous Sclerosis Program  - Offers assistance to individuals, especially the kids affected and diagnosed with the rare genetic disorder. Discusses medical, psychological and social issues experienced by victims.
  • Merck Manual: Tuberous Sclerosis  - Presents definition, symptoms and signs, diagnosis, prognosis, and treatment information.
  • NORD: Tuberous Sclerosis  - Presents the disorder’s synonym and brief medical background. Includes a list of organizations that advocate for the treatment of the neurological disorder.
  • Pediatric On Call: Tuberous Sclerosis  - Discusses the characteristics and conditions of several organs of patients affected with the genetic disorder.
  • Tuberous Sclerosis Alliance  - Organization that aids in supporting families with members affected by the rare genetic disorder. Also provides information on programs and services offered by the group.
  • Tuberous Sclerosis Canada  - Aims to provide support and assistance to affected people and their families through information campaigns and researches for the discovery of the disease's treatment.
 
 
 
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