- European Galactosaemia Society
- Organization that aims to promote awareness and conducts research about the hereditary disease within Europe. Includes discussions and publications.
- NORD: Galactosemia
- Outlines the synonyms of the disorder and provides general discussions on the characteristics and cause of such illness.
- Parents of Galactosemic Children, Inc
- Non-profit group that provides assistance and support to families affected by the rare genetic metabolic disorder.
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