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  • Association for Glycogen Storage Disease: Pompe Pages  - Group that supports families and patients diagnosed with the rare genetic disorder. Provides updates on the charity organization's events, news updates, and fund raising activities.
  • E-Medicine: Glycogen-Storage Disease Type II  - Contains updates on the current medical assessment of the disease, which is also known as the Pompe Disease. With statistical data and analysis of affected individuals in the US.
  • Pompe Community  - Provides resources about the rare genetic disorder for families, patients, and health care professionals.
 
 
 
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