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Category Description:
 

This category hold informational sites about Soto syndrome, also know as Cerebral Gigantism. Includes organizations and support groups.

  • National Organization for Rare Disorders  - NORD provides a general description of Sotos syndrome, gives the alternate name and provides a list of related organizations.
  • NINDS - Sotos Syndrome  - The National Institute of Neurological Disorders and Stroke gives a definition of this rare genetic disease, the treatments, prognosis, and research being done.
  • Sotos Syndrome Support Association of Canada  - SSSAC/ACESS aims to provide education and support to Canadian families of persons with cerebral gigantism. Find resources and photos.
 
 
 
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