Ankylosing Spondylitis

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Ankylosing Spondylitis is a chronic form of spondylitis, an inflammation of a spinal joint. It is a painful inflammatory disorder in the back in which the vertebrae are connected by fibrous tissue (becoming squared) that causes the spine rigidify. An autoimmune disease, ankylosing spondylitis is also known as Bekhterev's disease, Bekhterev syndrome, and Marie-Strümpell disease. The term comes from the Greek words "ankylos" which means stiff and "spondylos" which means vertebrae.

The disease primarily affects 20-40 year-old males (a 3 males: 1 female incidence ratio) with initial symptoms appearing, on average, at 25-28 years. The usual first symptom is chronic pain and stiffness in the lower part of the spine, especially morning stiffness. In 40% of documented cases, inflammation of the eye, vision loss, and photophobia occur during ankylosing spondylitis onset. Notable with this disease is the observation that severe pain can be felt while at rest which a sufferer may alleviate by physical activity.

There is no known cure for ankylosing spondylitis at present though a combination of posture correction, physiotherapy, exercise, and medication helps.

  • Ankylosing Spondylitis Association of Ireland  - Organization aiming to promote and heighten public awareness regarding ankylosing spondylitis specially with regard to its effects and management. Also serves as a source for support and advice.
  • Ankylosing Spondylitis Groups of Australia  - Serves as a hub for state ankylosing spondylitis support groups to present current AS information and activity details. Hosts active support groups with regular events.
  • Ankylosing Spondylitis International Federation (ASIF)  - Global network of societies of patients who suffer from ankylosing spondylitis and related diseases. Aims to raise public awareness about the disease, facilitate the sharing of information and experiences, and support the development of newly formed societies.
  • Arthritis MD: Ankylosing Spondylitis  - Presents the disease's signs and symptoms, diagnosis, and treatment options.
  • Back in Play  - Pan-European campaign aimed at raising ankylosing spondylitis awareness.
  • Enbrel: About Ankylosing Spondylitis  - Educates users about the risks and benefits of Enbrel (etanercept) in the treatment of ankylosing spondylitis (AS).
  • KickAS  - Ankylosing spondylitis support forums and information source. With a patient guidebook, papers, pain map, related acronyms reference, and patient stories.
  • Mayo Clinic: Ankylosing Spondylitis  - Definition of the inflammatory disease and details about its causes, risk factors, complications, coping, treatment, and prevention.
  • My Back Pages Regarding Ankylosing Spondylitis  - Personal account on dealing with ankylosing spondylitis, how the disease progresses, and medications used.
  • National Ankylosing Spondylitis Society (NASS)  - Charity created to serve sufferers of ankylosing spondylitis, their families, and medical teams. Site presents news, forums, and resources related to the disease.
  • Spondylitis Association of America  - Nonprofit US organization devoted to finding a cure for ankylosing spondylitis and other similar diseases. Provides advocacy, research, and resources and support.
 
 
 
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