Myositis

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  • Cure JM Foundation  - Organization dedicated to helping juvenile dermatomyositis and juvenile polymyositis patients. Provides news stories, message board, photos, and a family support network.
  • Dermatomyositis (Pediatric)  - Details what it is, who gets it, causes, diagnosis, tests, treatment, health impact, and links to additional resources.
  • Inclusion Body Myositis (IBM)  - Presents condition overview, information for new patients, clinical trials, web resources, and coping suggestions.
  • Johns Hopkins Myositis Center  - Information includes disease overview, medical staff, research, resources, and center details.
  • Juvenile Dermatomyositis  - Gives description, incidence, causes, heredity, prevention, contagion, symptoms, variations, diagnosis, therapy, treatments, and prognosis.
  • Lenor's Journey  - Site presenting the life and struggles of a victim of polymyositis and pulmonary fibrosis. With photos, books, health updates, and information on diet and medication.
  • Mayo Clinic: Polymyositis  - Examines definition, symptoms, causes, complications, tests and diagnosis, treatments and drugs, and coping and support information.
  • Medscape: Dermatomyositis  - Provides background, pathophysiology, etiology, presentation, diagnosis, treatment, and medication options.
  • Merck Manual: Polymyositis and Dermatomyositis  - Discusses both conditions, including differences, symptoms, diagnosis, prognosis, and treatment.
  • Myo-Musings  - Musings of a woman with Inclusion Body Myositis, includes coping skills, pain, books, related links, and her personal story.
  • The Myositis Association  - Organization created to find a cure for inflammatory and other related myopathies and to help those suffering from such diseases.
  • Myositis Support Group  - Online place for learning more about myositis and related diseases. Provides a discussion forum and bulletin boards.
  • NINDS: Inclusion Body Myositis  - Presents short discussions on the chronic muscle inflammatory disease. Includes symptoms, prognosis, and list of organizations involved in the treatment of the disorder.
  • NINDS: Inflammatory Myopathies Fact Sheet  - Looks at what they are, causes, risk factors, signs and symptoms, diagnostic methods, treatment options, and prognosis.
  • OrthoInfo: Myositis  - Reviews symptoms, diagnosis, forms, and treatment options.
 
 
 
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