- All Reference Health: Ectodermal Dysplasia
- Provides an examination of symptoms, diagnostic methods, treatment options and prognoses.
- Andy.org: Ectodermal Dysplasia
- Access journals, blogs, inspirational thoughts and news from the father of a patient.
- Cafamily.org.uk: Ectodermal Dysplasia
- UK-based support organization presents contact info, news, support groups and medical definitions.
- Ectodermal Dysplasia FAQ
- Find answers to frequently asked questions about the condition.
- Ectodermal Dysplasia Mailing List
- Enter for FAQs, membership info, patient pages and more.
- Ectodermal Dysplasia Society
- Find background information about the society plus news, research, fundraising events and contacts for support groups.
- Ectodermal Dysplasia Support
- Message board community offers supportive connections for those affected by the disorder.
- eMedicine: Ectodermal Dysplasia
- Delivers detailed information about symptoms, clinical info and treatment options.
- Family Village: Ectodermal Dysplasia
- Contains chat rooms, support resources, medical info and related organizations.
- Medline Plus: Ectodermal Dysplasia
- Offers illustrations and statistics plus alternate names, causes, symptoms and treatment options.
- National Foundations for Ectodermal Dysplasia
- Illinois-based foundation proffers FAQs, genetic info, research, support groups, photos, research and more.
- NORD: Ectodermal Dysplasia
- Learn about the disorder's subdivisions and major characteristics. Also features contact info for support groups.
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