- Cystinosis Research Network
- Contains information about the CRN, the disorder, community news, conferences, resources, and a newsletter. Based in Illinois.
- eMedicine
- Offers a clinical article about cystinosis written by Dr. Ewa Elenberg.
- Genetics Home Reference
- Find in-depth information about cystinosis. Includes the types, a definition, and the genes related to the disorder.
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