Organization based in Idaho provides information and support for families and children with 9p syndrome. Includes news and links to further resources.
Las Vegas Review-Journal
Features an article written by Lisa Kim Bach concerning Alfi's syndrome. The article is entitled The Ninth Chromosome.
Contains an abstract of an 18 yr old male with monosomy 9p syndrome.
Who Named it?
Gives the name of the person associated with Alfi's syndrome and a brief description of the disease.