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  Top  > Health  > Conditions and Illness  > Nutritional and Metabolic Diseases  > Porphyrias 
  • Genetics Home Reference: Porphyria - Gives definition, prevalence, related genes, inheritance, diagnosis, other names, related information, and glossary.
  • Genome.gov: Learning About Porphyria - Contains description, signs and symptoms, diagnosis, treatment, heredity, triggers, classification, cutaneous and acute types, research, and additional resources.
  • NDDIC: Porphyria - Furnishes definition, types and affected enzyme, causes, symptoms, diagnostic methods, treatment options, basic facts, and research information.
  • Medscape: Acute Intermittent Porphyria - Professional information includes background, epidemiology, etiology, presentation, diagnosis, workup, treatment, medication options, and follow-up guidelines.
  • Orpha.net: Cutaneous Porphyrias - Emergent care recommendations include condition synonyms, definition, and pre-hospital and hospital emergency guidelines. [PDF].
  • Acute Hepatic Porphyria Neuro-visceral Crisis - Orpha.net offers synonyms, definition, and recommendations for pre-hospital and hospital emergency care.
  • The Drug Database for Acute Porphyria - Features drug and safety information for patients in France, United Kingdom, Norway, and Sweden. Sponsored by the Norwegian Porphyria Center (NAPOS).
Top  > Health  > Conditions and Illness  > Nutritional and Metabolic Diseases  > Porphyrias  > Organizations 
  • American Porphyria Foundation - Serves to enhance public awareness of porphyrias, educate, support research, and act as advocate. Includes news, research, registry, and drug information.
  • Cure Porphyria Organization - Volunteer organization shares history, mission, services, and support group.
  • European Porphyria Network (EPNET) - Works to improve diagnosis and treatment of porphyrias, with history, goals, news, and information for patients and healthcare professionals.
  • The Porphyrias Consortium - Collaborative seeks to improve diagnosis, treatment, and prevention of these conditions. Includes patient and professional information, news, events, and history.
  • British Porphyria Association - UK volunteer-run charity discusses porphyrias, news and events, coping tips, publications, and related information.
  • Porphyria Association - Australian organization reviews what it is, why porphyria is studied, testing, safe and unsafe drugs, treatment anecdotes, and latest news.


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