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Amyotrophic Lateral Sclerosis
- ALS Forums - Patient support group which provides a venue for interaction and sharing of information related to the ALS disease.
- Defeating ALS - Dedicated to raising funds and promoting awareness about the disease. Provides details on events and how to join the cause.
- eMedicine Health: Dementia in Amyotrophic Lateral Sclerosis - Details on the causes, symptoms, tests, medications, treatment, follow-up and prevention of dementia in ALS.
- eMed TV: ALS Channel - Contains articles discussing the symptoms, diagnosis, treatment and research related to the neurological condition.
- Living With ALS - Features an inspirational book written by Bert Woodard, entitled Living With It, Not Dying of It, which deals with his experiences as an ALS patient.
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Associations
- ALS Society of Canada - Funds scientific studies, supports provincial societies, and builds public awareness. Also contains library of articles and information about the condition.
- Ocean City Boardwalk - Holds an annual fund raising event which aims to increase public awareness and fund programs and services for the ALS Association.
- ALS Association - Non-profit health organization which conducts research, advocacy, public education, and awareness about Amyotrophic Lateral Sclerosis and its cure.
- Muscular Dystrophy Association - Offers booklets, guides and magazine articles about the disorder also known as Lou Gehrig’s Disease.
- International Alliance of ALS/MND Associations - Provides a venue for information exchange and support among organizations dedicated to ALS and related motor neuron diseases.
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Causalgia
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Horner's Syndrome
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Cerebellar
- NINDS: Cerebellar Hypoplasia - Discusses the treatment, prognosis and research on the neurological condition. Shows contact details of related organizations.
- NINDS: Ataxias and Cerebellar Degeneration - Provides information about the treatment, prognosis, and research on ataxia and cerebellar or spinocerebellar degeneration.
- Paraneoplastic Cerebellar Degeneration - Features an article about a kind of disorder of the cerebellum. Also contains a table showing a list of antibodies with their corresponding associated diseases and neurological symptoms.
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Persistent Vegetative State
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Associations
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Alzheimer's Association
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Caregiver Support
- Alzheimer's Disease Research Center - Facilitates treatment developments for anti-dementia. Also presents fact sheets about the disease and historical overview of the group.
- New York Memory Services - Deals with the prevention and diagnosis of memory disorders through available medications and behavioral treatments. Also discusses the signs and symptoms of dementia and Alzheimer's.
- Journalkeepers.com - Sells creative journaling products that facilitate healing, promote communication, and provide positive self-esteem. Shows samples and art galleries.
- LightBridge Healthcare Research, Inc. - Provides learning resources and educational guides. Includes a forum, newsletters and featured articles.
- Putting Care on the Map - Research facility in the University of Toronto which studies about care giving and Alzheimer's. Also provides project information and details on research.
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Research
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Brachial Plexus Palsy
- NINDS: Brachial Plexus Birth Injuries - Provides facts on the treatment, prognosis and research done on the paralysis of the upper brachial plexus.
- Brachial Plexus Center - Includes overview about the condition and contains a brochure detailing the treatment service and facilities available at St. Louis Children’s Hospital.
- Erbs Palsy Association of Ireland - Charity that aims to extend support for patients and families. Details the types of Erbs injuries, treatments, and its psychological effects.
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Carpal Tunnel
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Neurofibromatosis
- NINDS: Neurofibromatosis - Contains overview about the genetic disorder of the nervous system, along with details on its treatment, prognosis, and research.
- MD Anderson Neurofibromatosis Clinic - Treatment facility which caters to patient diagnosis, education, awareness and research on strategies for NF complications.
- NexGenix Pharmaceuticals - Specializes in developing drugs for neurofibromatosis and other sporadic tumors. Also contains a discussion about the types of the disorder.
- Neurofibromatosis 2 Crew - Support community for patients and families dealing with the genetic disease. Includes FAQs, guidelines, and a group list description.
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Associations
- British Columbia Neurofibromatosis Foundation - Aims to empower and improve lives of people affected by the genetic disorder through support services, awareness campaigns, and treatment research funding.
- Children’s Tumor Foundation - Non-profit medical institution which supports research and development of treatments and cures of genetic disorders. With details on volunteer programs.
- Neurofibromatosis Association of Australia - Focuses on supporting members, raising public awareness, and promoting research on the disease. Posts a membership application form and event updates.
- Neurofibromatosis Association - Employs a team of specialist advisers which provide help, support and advice to patients, families, and health professionals. Details fund raising activities and events.
- Neurofibromatosis Clinics Association - Aims to raise awareness about the genetic condition through information dissemination campaigns for health professionals, patients and the public.
- Neurofibromatosis Incorporated - Charitable organization which provides a support network for patients through education, advocacy, partnerships, and research.
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Neuromuscular Junction Diseases
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Botulism
- CDC: Botulism Emergency Preparedness and Response - Overview of the examination on the muscle-paralyzing disease which can be used as a biological weapon. Also provides resources and guidelines for health professionals.
- Frozen, Fully-Cooked Products and Botulism - Advisory from the United States Department of Agriculture which presents recommendations for proper food handling.
- DrGreene.com: Infant Botulism - Reports on the type of food poisoning in infants which may have been caused by honey. Includes details on the disease's symptoms, diagnosis, treatment, and prevention.
- KidsHealth.org: Infant Botulism - Discussion on the causes, exhibited symptoms, and treatment of the condition experienced by young children.
- Infant Botulism Treatment and Prevention Program - Aims to provide and improve treatment of the disease and other related conditions in infants. With general information and usage instruction on an orphan drug named BabyBig.
- Mayo Clinic: Infant Botulism and Honey - Shows an article which explains the risk of infants in food poisoning from eating honey.
- Medline Plus: Botulism - Details the causes, symptoms for adults and infants, exams, tests, treatment, prognosis, possible complications and prevention of the condition.
- NORD: Botulism - Presents general description and a list of the disorder subdivisions associated with the condition and shows contact references of affiliate organizations.
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Education
- The Business of Being Born - Ricki Lake and filmmaker Abby Epstein, explore whether or not birth should be viewed as a natural event or a catastrophic medical emergency through this poignant documentary.
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